The donors typically aren't asked so the donation is presumed and the takers just take.
In the US, the FDA said "NO"
Or at least "not yet." The FDA isn't so backwards as to prevent science from doing what science must do on moral grounds.
The US believes in science too...as good westerners of course we subscribe to that creed.
We're just a bit slower sometimes. These sticky morality discussions take some time to ignore. Sometimes it takes a little bit of work for us to isolate these moral concerns and cram them into the category of "moral" so we can move forward with the separated category of "science" as the unrelated and more pragmatic, (and therefore more real), objective.
At the FDA, they can only dispassionately weigh all empirical categories of "science."
Science is a public concern.
Moral is for the religious and is only a private concern.
So what does science say?
Science says that Mitochondrial Donation is still not very safe.
Darn. Not safe for who?
Well, before answering that, can we ask why "safety" is even a problem for science in the first place? I mean, it is beyond me as to why science should care one bit about safety. That sounds too much like something that would fall under the moral category. Science ought to just be neatly concerned with the category of "results" and not the category of "moral." At least that always seems to be the line given if anyone voices an objection to an effort deemed scientific.
Is safety only good because it pertains to results or is treating people in an unsafe manner also not a morally problematic?
In any case, does Mitochondrial Donation work?
Yes.
So what does science care if there is a high risk of complication for the people involved.
Care for people is a moral issue.
So to keep up the confusion of issues...some science concerns itself about some health results for some humans and some science does not concern itself with health results for some humans. When the latter happens it is no longer deemed a scientific concern even if the science is right smack dab in the middle of whatever is going on.
Well, at least, the contradiction seems apparent to me.
The UK is considering approval of this procedure as well and hearings were held last week.
I was surprised to see my comments published in Parliament's Science and Technology Committee report!That was kind of gratifying particularly as it appears that only 25 written comments were submitted.
With such a small response, I suppose that any voice is a loud voice.
I don't hold out any huge expectation that Parliament will prohibit or even pause proceedings of this procedure.
The UK always tends to the aggressively progressive in the areas of bioethics concerns.
In any case, here is the cut and paste from a section of the link above with my comments.
I think that despite the claims of science, the human element is what drives this.
Peoples' suffering matters and that is the driver, (at least the PR driver), for getting these sorts of dicey procedures approved.
I tried to address the people who are fearful of their children being born with Mitochondrial Disease and I think that was a little bit unique in the replies.
RESPONSES TO ARGUMENTS FOR MITOCHONDRIAL REPLACEMENT:
The personal testimonies of the parents whose
children have endured this devastating disease is
heart wrenching. Doubtless, the committee is already
familiar with these stories and will be
presented with further accounts. One often hears a
retort somewhere along the lines that those
who have not suffered a particular trial have no
business impending the efforts of the afflicted to
find relief. I wanted to take the unenviable task of
replying to those real individuals who have
suffered and express that reality that the methods
of Mitochondrial Replacement will not
alleviate the pain that they and their children are
experiencing. What is more, these techniques
will cause more pain for others.
We owe it to those who suffer to provide honest
answers to their questions that are both
empathetic and also take into consideration the
whole of this problem. The questions below are
posed in the good faith effort to summarize the
public arguments that have called for support of
Mitochondrial Replacement. The answers are also
posed in good faith, in an effort to speak to
the real and pressing personal concerns that have sparked the current
review.
Q:
Adoption is not something that I want to have to consider. I want to be able to
look at my
baby say,
“she is mine, she has the same traits as me.” That is important to me. Everyone
else
has the
opportunity to do that with their children. Shouldn’t I be able to have the
same
opportunity?
A: All
parents who conceive undergo some level of uncertainty. That is the fear and
joy of
parenthood.
There is always some element of surprise with a new baby and no one can
guarantee
who this child will be and what strengths and weaknesses they will carry.
Neither is
there any
way to ensure that we can somehow level the field of parenthood to provide a
false
guarantee
of equal level of uncertainty, with regards to health or any other personal
outcomes.
Of course
we should work to prevent and cure health problems but not at the risk of
making an
artifice
of our children’s genetics. The science that would seek to pre-determine the
particular
traits of
our children has been referred to as the pursuit of “designer babies.” We
instinctively
know that
there is something dangerous about this sort of scientific endeavor.
Q: All of
the child’s characteristics are contained in nuclear DNA. This isn’t a
three-parent
baby.
Isn’t mtDNA an overwhelmingly small and inconsequential part of the total
make-up
human DNA?
A: It is
simply not true that a child only get its characteristics from nuclear DNA. It
is true that
mtDNA
accounts for less than 1% of human DNA but genetics are not simply a matter of
quantity.
Neither is this an accurate way to portray the role of mtDNA. Just because the
vast
majority
of DNA is nuclear does not mean that there is not a large abundance of
non-nuclear
DNA in
the body. The particular substances of DNA are of importance and it is
important to
understand
that the coding region of the mtDNA is the region of a person’s DNA that
contains
the most
ancestral markers. In dealing with mitochondrial related disease itself we
cannot
neglect
that mtDNA is so pivotal that it is essential for the survival of the
individual. mtDNA
cannot be
treated as a negligible ingredient in the medical quest to treat mtDNA related
illness.
Furthermore,
if you are so determined to have a baby with your genetics, why then would you
insert
someone else's genes into your baby? No manipulation of language will change
the fact
that this
child will be tasked with parental identity issues that are unprecedented in
human
history.
Q: Don’t
you think it is unfair to refer to or to associate Mitochondrial Replacement
with
“designer
babies”?
A: While
the debate over “designer babies” typically involves the manipulation of
particular or
isolated
DNA and mitochondrial replacement involves a broader introduction of gene line
transfer
it is the explicit objective in both scenarios that genetic traits will be
altered in children.
It is
simply bad science to suggest that mtDNA replacement has no bearing on the
characteristics
of offspring when the intended effect is to change a portion of DNA that
carries
maternal
inheritance patterns.
Btw, much of the questions were almost directly pulled from this Guardian interview of a couple with a child who suffers from Mitochondrial Disease.
This story really is heart breaking.
Mother of divine grace, pray for us!
Mother of divine grace, pray for us!
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